Trying to deal: I've been thinking

Wednesday, April 18, 2012

I've been thinking

I've been thinking alot since last apt with NL. Why does she talk about chiari in apts but in the mychart thing online and the copy that her nurse handed me in the apt says cyst of brain? Also one of the major complaints she has listed is anxiety? I have never mentioned anxiety with her and of course I'd be anxious and gittery concerning all of this..They run me around worse than the Navy ever did!?!?

1 comment:

UnknownApril 19, 2012 at 7:35 PM
Ugh, those are legal documents and falsifying them the way she has is very serious. You need to print out copies of that and show them to the folks at the Mayo clinic when you go.
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Invisible yet again

The first thing that comes to my mind is "But you don't look sick!?" Yeah, we get that alot. Chiari Malformation is considered an invisible illness because you don't usually see the symptoms on the outside.
Of course I look normal.
You can't see the pressure in my head.
You can't see that it feels like my head could explode at any minute.
You can't see that my hands and feet are numb and tingling.
I may stumble or walk into something, but I just look clumsy to you...You don't see my balance and depth perception problems.
You don't hear the ringing in my ears.
You hear my speech slurr or I trip over my words. You laugh, I laugh. But do you know why it happens? Does that come to mind when you hear it?
You don't see me almost black out from getting dizzy and lightheaded if I drive too fast over a hill.
(I know why I can't ride rollercoasters.)
I could continue to go on and on with the list.

Trying to deal

Wednesday, April 18, 2012

I've been thinking

1 comment:

My chiari

Knock it out

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