Trying to deal: pissed, confused

Saturday, April 28, 2012

pissed, confused

Went for my follow up yesterday with my GP. He listened to my lungs and he still hears crap in lungs. This is going on 4 weeks of antibiotics and daily shots. He said I have to keep on the pills til the 5th and have another chest xray. If it's still there i have to go to a pulmonologist...How many specialists do we have to have? Is pneumonia common. I looked it up last night and couldn't find it with Type 1 but aspiration pneumonia is common with type 2? Did the NL and NS in Waterloo under-diagnose me?

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Invisible yet again

The first thing that comes to my mind is "But you don't look sick!?" Yeah, we get that alot. Chiari Malformation is considered an invisible illness because you don't usually see the symptoms on the outside.
Of course I look normal.
You can't see the pressure in my head.
You can't see that it feels like my head could explode at any minute.
You can't see that my hands and feet are numb and tingling.
I may stumble or walk into something, but I just look clumsy to you...You don't see my balance and depth perception problems.
You don't hear the ringing in my ears.
You hear my speech slurr or I trip over my words. You laugh, I laugh. But do you know why it happens? Does that come to mind when you hear it?
You don't see me almost black out from getting dizzy and lightheaded if I drive too fast over a hill.
(I know why I can't ride rollercoasters.)
I could continue to go on and on with the list.

Trying to deal

Saturday, April 28, 2012

pissed, confused

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My chiari

Knock it out

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