Trying to deal: Happy but nervous

Tuesday, March 20, 2012

Happy but nervous

I got a call today and the Neuro dept accepted my case. My first apt is May16th and I'll be up in MN for 5 to 7 days. I am nervous about this because I do not know what tests they will want to run or what all they will say. I know their some of the best doctors in the world up there so trust them but still scared shitless

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Invisible yet again

The first thing that comes to my mind is "But you don't look sick!?" Yeah, we get that alot. Chiari Malformation is considered an invisible illness because you don't usually see the symptoms on the outside.
Of course I look normal.
You can't see the pressure in my head.
You can't see that it feels like my head could explode at any minute.
You can't see that my hands and feet are numb and tingling.
I may stumble or walk into something, but I just look clumsy to you...You don't see my balance and depth perception problems.
You don't hear the ringing in my ears.
You hear my speech slurr or I trip over my words. You laugh, I laugh. But do you know why it happens? Does that come to mind when you hear it?
You don't see me almost black out from getting dizzy and lightheaded if I drive too fast over a hill.
(I know why I can't ride rollercoasters.)
I could continue to go on and on with the list.

Trying to deal

Tuesday, March 20, 2012

Happy but nervous

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My chiari

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