I am beyond upset that I do know. The NS received my first MRI report and pictures in NOV 2011 showing the degenerative disc disease along with 3, yes 3 syrinx's and the Chiari. The only thing in my first apt with him that was EVER mentioned was the degenerative disc disease and said I needed surgery to correct 2 of the disc's in my cervical spinal column (C5,6,7) which I had done in DEC 2011. In April at an apt for follow up with the NS he FINALLY mentioned the Chiari. I had no clue that I ever had this and in doing research on Chiari and the syrinx's I find out that it explains alot of what has been going on for years.
I am pissed, hurt and just plain confused. People I thought that were supportive has turned the tide, because of me going to Mayo and my car breaking down, Ryan cannot go back to Philly, which I feel so bad about but my health has to come first. I feel rotten over this and here he is making me feel extremely guilty on this. Yesterday I was in tears over everything.
Today was day 5 of daily shots for pneumonia...2 more than a repeat chest xray. The nurse today took my vitals and my heart rate was 218..... she said it was to high...seriously? I told her thats been on and off for months now.
I'm trying to get through the rest of this semester with being on Dean's list and I seriously do not think I am going to make it, there's to much on my mind and stress. Migraines that are going on is making it impossible to even do homework at times let alone read. I am lucky to be able to walk without falling on my face cause I cant feel my entire left leg now except when there is severe pain in it...this is all screwed up.
What can happen because they did not deal with this when they first knew about it? Did that make me worse? I am just so screwed up right now
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