Trying to deal: Feel like this will never end

Sunday, April 22, 2012

Feel like this will never end

Went to ER last night cause I couldn't breath. My O2 was 88 and they did a chest xray. Have persistent bilateral pneumonia. I do not know how much longer I can do this. My GP is thinking everything could be affecting my immune system....

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Invisible yet again

The first thing that comes to my mind is "But you don't look sick!?" Yeah, we get that alot. Chiari Malformation is considered an invisible illness because you don't usually see the symptoms on the outside.
Of course I look normal.
You can't see the pressure in my head.
You can't see that it feels like my head could explode at any minute.
You can't see that my hands and feet are numb and tingling.
I may stumble or walk into something, but I just look clumsy to you...You don't see my balance and depth perception problems.
You don't hear the ringing in my ears.
You hear my speech slurr or I trip over my words. You laugh, I laugh. But do you know why it happens? Does that come to mind when you hear it?
You don't see me almost black out from getting dizzy and lightheaded if I drive too fast over a hill.
(I know why I can't ride rollercoasters.)
I could continue to go on and on with the list.

Trying to deal

Sunday, April 22, 2012

Feel like this will never end

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My chiari

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