Trying to deal: Now scared shitless

Tuesday, May 8, 2012

Now scared shitless

Went to NL this morning before my final, she said the pressure could be caused by pressure inside my eyes so she wanted me to see a eye dr to get that checked. Went to take my final in Japanese history and culture (only good news I got a B+ on that so no fear of not graduating on the 11th now!!!! wahhooo!!!!!) Went to the eye dr got an exam and the pressure is within normal limits. So go to my NS apt this afternoon, he went over everthing with me and said we are going to give ametripyline and topamax a try and if after this month (apt on the 31st of May already set up) then decompression surgery....why the hell am i scared shitless now?!?!

1 comment:

Shalunya21May 10, 2012 at 5:16 AM
I think its normal to be scared shitless. You have this barrage of confusing symptoms that perplex the medical community. Try to have faith and remind yourself it will be ok. I know its not easy. Keeping you in my prayers.
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Invisible yet again

The first thing that comes to my mind is "But you don't look sick!?" Yeah, we get that alot. Chiari Malformation is considered an invisible illness because you don't usually see the symptoms on the outside.
Of course I look normal.
You can't see the pressure in my head.
You can't see that it feels like my head could explode at any minute.
You can't see that my hands and feet are numb and tingling.
I may stumble or walk into something, but I just look clumsy to you...You don't see my balance and depth perception problems.
You don't hear the ringing in my ears.
You hear my speech slurr or I trip over my words. You laugh, I laugh. But do you know why it happens? Does that come to mind when you hear it?
You don't see me almost black out from getting dizzy and lightheaded if I drive too fast over a hill.
(I know why I can't ride rollercoasters.)
I could continue to go on and on with the list.

Trying to deal

Tuesday, May 8, 2012

Now scared shitless

1 comment:

My chiari

Knock it out

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