Tuesday, August 14, 2012

Very upset right now

I am in a major dilemma I think.
 Saturday night I ended up in the hospital because during the day Saturday I fell 5 times because I couldnt feel my left leg at all and come to find out I am not even lifting my toe on left leg. I was there for 3 days on morphine, now home using a walker with a migraine since yesterday afternoon. They did a CT of head, everything is fine there, did a MRI of lumbar and thats great (finally I have a part of spine that is good), MRI of cervical and thoracic, their both the same, no change in the syrinx's.
The NS said that "chances are" the syrinx's are causing the issues with leg, chances are the top syrinx. I will attach copy of the first MRI showing it. The NS said he's never done surgery on syrinx but he did do my chiari. I have major issues of handing my spinal cord over to a NS who's never done it before. I have apt set up with Mayo up in Rochester MN the 24SEPT for a week, the NS here has set up a flow study for Thursday, they scheduled it before I was discharged from hospital, then have apt to go over it's findings on the 26SEPT. Tbh going to him scares the crap out of me!!

  :( I am so confused on how to deal with this. I feel safier with Mayo but how do I deal with the NS here who's done a great job with my fusion and my chiari :( I don't want to burn my bridges.....I want to get fixed. I want to get to where I was again. I know I will never be where I was when I joined the Navy again but to be able to go out for a simple walk or hike, maybe when I do go to Hawaii for vacation go try to surf (i know, wishful thinking there). I just want to feel human again!!!!
 

No comments:

Post a Comment